I can't get away from MS. Some say "I have MS, but it doesn't have me."
I tried that motto.
I had a well meaning visitor. She is very kind. She shows support in a way that only a regular person can. A little sympathy, an attempt at empathy, an offer of laughter, and gifts that she picked up that reminded her of me.
She offered to take me places. I really am quite content to stay in.
She offered to introduce me to her group of friends. I know one can never have enough friends, but honestly, I've got a wonderful garden of friends that I've nurtured through the years.
She brings me gifts. I really have no use for this collection of junk. It serves more as a reminder of how I can no longer browse the stores on my own.
I was very angry the last time she came. She came unannounced and I was just not up for a visitor. Her offerings of kindness only fueled my fire to prove my independence.
I spent the following day allowing the anger to eat me up. Anger at my husband for thinking he could be my social director. Anger at myself for allowing her to think she could drop by anytime. Anger at MS that I couldn't escape from an unplanned situation.
I spent the next day planning how I would show them I was still independent. I refused all help my husband offered. I got dressed, ate, folded laundry, straightened some crap.
I started a new hobby, and even persuaded hubby to take me to the store to buy supplies.
On the third day, I played with my new hobby for a few hours. I reached out to many friends and set up play dates. I commented on Facebook. I blogged.
On the fourth day, I did the same thing and was amazed and excited that my body was still cooperating! I sat in my comfy chair a little more though and read a book.
On the fifth day, I got dressed a little more slowly. I tried to play with my new hobby. I actually managed until 1:00 in the afternoon before my body crumbled and I had to call hubby to put me to bed." I just need to close my eyes for a minute" I told him. An hour later I awoke and figured I'd be refreshed! The energy exerted to go to the bathroom was all I had left. I sat in my comfy chair and read until the sun set. I could not get up by myself so I called hubby to put me to bed. I slept from 7:00 pm until 7:30 am.
Yup, I sure showed them! I don't need anyone! I can do it all myself! I can fight this crazy thing called MS!
Yup.
Makes me feel angry just reading this. People without crippling fatigue just don't get it. They have no clue how severe the payback is for something like a "friendly social visit." Ech. Personally, I prefer my solitude as well.
ReplyDeleteOoohhh thank you! I'm sorry I made you angry though! Being busy is so over rated! Thanks for understanding that solitude is not always a bad thing! Peace...
DeleteOh I so agree with both of you!! Crippling fatigue... yes, that's it exactly. Payback - I deal with payback all the time.
ReplyDeletePeople like that couldn't possibly accept that they are part of the problem! After all, aren't they coming round out of the goodness of their heart, giving you lovely useless gifts, patronising you and making you feel obligated to them? Lady Muck isn't in it.
Just being angry is exhausting. Continual low-level stress induced by having to fend off the well-wishers causes payback. Management of chronic illness is made more difficult by "friends" like these!!
Shoshi