Sometimes I will have something on my mind, and then I read someone else's blog, and it's a similar topic. I wonder if it's coincidence, serendipity, or self fulfilled prophecy.
I Subscribe to the Weekly issue of multiplesclerosis.net (click it to open the link)
It's a site that offers articles on the topic of MS. Along with current information and articles, the site also offers an opportunity for people who are touched by MS to share their blogs.
Yesterday I got an email that this week's newsletter was available.
I often read the blog posts by Kim Dolce who is is a regular writer there. This week her blog was entitled Telling the Story of You Click here to read the blog.
By Kim Dolce—November 3, 2014
She asks What kind of story are you telling now? Is it one of triumph over the haunting?
I found it so relevant as I am now at a point where I find myself thinking less about the period of time when my symptoms first appeared, the ensuing diagnosis, and my first few years of coming to terms with leaving the workplace and being
disabled. What I want to think about now is not how I got to this point in my
journey with MS, but, rather, what my life is like now. I know I've only got a few years under my MS belt compared to some MSers who have upwards of 15 years, but, thanks in part to this type of sharing of information and to my extremely supportive family, I cry less. I wouldn't say I've reached some great epiphany in life where I appreciate each day and each beat of my heart. I never was one to ask "why me?". I'm forever grateful that my children are healthy and happy.
But I do still hold a secret wish for a miraculous cure. I still dream about walking. I still think about what kind of job I'd like to get and what I would bake and cook for my family when that miracle cure happens. But mostly my story has come to be one of calm and comfort. Being a naturally passive person, it was not too difficult
for me to surrender to the proverbial riptide. Again, I must say the support I receive
from my family is instrumental. My husband takes care of everything from house work to paying bills and from getting me coffee to getting me showered. My daughter will babysit me and take me out and more. My son keeps all my computer and Internet thingies working. So my story is now of how to not become a negative bitch. I try to keep my creative juices flowing, although I realize I am neither artist nor poet. Most of my moments center around Appreciation and gratitude. That is hard because I used to be the main caretaker and do-er.
My story will continue as the disability progresses. Yes, I am scared. But I am safe, and I am blessed.
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